Caring for people with dementia is challenging in different ways. They’re in a progressing state of cognitive decline, and watching it develop can be emotionally draining. You might be seeing somebody who raised you now need care themselves.
Dementia affects people differently. Caring for those with dementia can be a difficult balancing act where you need to give the person agency and independence while also ensuring they’re safe. Here are four things to remember that will help you provide them with support.
1. Familiarity Helps
People with dementia may feel more comfortable surrounded by things that seem familiar, like old pictures of family and friends or items they’ve grown up alongside. Many people with dementia react positively to music from their childhood, as the sounds have a way of lodging themselves deep in a person’s memory.
2. Positive Reinforcement
It’s easy to feel upset or sad when a person with dementia struggles to remember things, including personal things that seem obvious, such as who you are. Don’t take it personally! It’s important to frame their memory struggles in positive terms.
Remind them gently, rather than act despondent and say things like, “don’t you remember?” It may feel hurtful to see someone you love forget who you are, but they’re in a state of cognitive decline. That’s the condition speaking, not their heart.
3. Agency and Independence
People with dementia are still adults who need to be given space to act independently. Support them in this by colour coding or clearly labelling drawers with their clothes in them to help with daily routines.
They may need help depending on the nature of their condition, but it’s important to respect their sense of agency. Sometimes, their sense of “self” may be in flux, and there’s a tremendous social expectation they need to bear to act like the people you remember.
But they still very much are themselves, and it’s best to create an environment in which they can be safe and happy, and retain their independence.
4. Professional Assistance
As a person’s dementia advances, caring for them may be difficult or impossible, despite the caregiver’s best intentions. Look for a home for seniors living with dementia that is led by nurses who understand the range of conditions people face and the type of environment they need.
The best centres have a warm, embracing philosophical approach supported by clinical knowledge and experience. For example, they understand the difference between the absence of agitation and a person’s true well-being and believe that reducing anxiety can’t be founded on deception.
Caring for them isn’t about managing their behaviours. Rather, it’s about providing the most nurturing, supportive atmosphere possible.
People change as they get older. Dementia can take many forms, and not all memory loss is necessarily a form of dementia. Supporting loved ones who have these conditions can be difficult for many reasons, but if you keep the above four tips in mind, it should guide you and help provide a better level of care.